Suggestion Box
Ideas for a new board? Something you'd like to see on the website? How can
we make your Cushing's experience a little easier?
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The "Main" Board
Posts are moved from this forum to another after about 10 days of no
response. A link is provided to the new forum. Posts older than 30 days
are removed from this forum to help conserve space, but are still available
in their new forum.
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Board_Moderator
Weekend Check-In days
Every week, we to ask everyone to check-in and say what's up with them or
just "hi", something to let us know that everyone is out there and doing ok.
Please try to post something in this thread during the week, even if it's
just a quick "hi", so we know you're still out there.
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dcrosley,
SuziQ
If you'd like your information posted, please put it on this board.
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Board_Moderator
Healing Thoughts and Prayers, Please!
Even if you're not the praying type, feel free to post here if you'd like to
request prayers, positive thoughts and healing energy for yourself or anyone
else.
This is a non-sectarian community. We are people from every ethnic and
religious background. This community respects everyone's personal beliefs,
but no specific religion or nationality.
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Lost and Found
Is there someone you haven't seen around for a while? Maybe someone else
has heard from them.
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Board_Moderator
Relationship Issues
We all seem to have troubles with relationships - with our partners,
friends, family, the world in general. Please post your relationship issues
here.
NOTE: This board may include posts discussing sexual issues.
Forum led by:
Board_Moderator,
Jinxie
CUSH Organization
CUSH...What is it? How can I join? What about Cushing's Awareness pins?
How do I get the newsletter mailed to my home?
Forum led by:
Board_Moderator,
SuziQ
Spread the Word
Help spread the word about Cushing's Disease and what a terrible disease
this is. Have talked about Cushing's in the media?
Now includes Cushing's Book Info...Sue and other board members are
compiling information for a book for and about Cushies. Please contribute
information, if you can.
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Board_Moderator,
Leslie
Cushing's in Young People
This forum was suggested by one of our younger visitors who suggested having
a special place for those under 25 - or the young at heart! - with
Cushing's.
Forum led by:
Board_Moderator,
Erin G.
Doctors, Hospitals, Insurance, NIH and Disability
This is a place to post all the doctors, hospitals and medical personnel who
have been helpful to you. Also, there is information about NIH (the
National Institutes of Health) and its protocols for Cushing's.
Info For Travellers
Going out of town for testing or surgery? Find lodging and local info here.
If you have info for your area, please post it here. If your state isn't
yet listed, please start a new topic with the state listed as the topic and
the town as the subtopic, so that people can find these easier. Thanks
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Board_Moderator
Help Yourself
Luisa suggested this. It will contain positive thinking, things that one
can do to help deal with Cushing's emotionally, suggestions on eating well,
exercise for those who can.
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Board_Moderator
Healthy Recipes
Suggested by Sue for low-fat, low-calorie recipes. Enjoy!
The Exercise Room Terry Jackson suggested this board, to help us all with our exercise
routines.
Addison's
For people who have Addison's "naturally" or who've had the bilateral
adrenalectomy, a place to share medication ideas, adjustments, etc.
Forum led by:
Board_Moderator,
Shauna
PCOS
Many of the symptoms of Polycystic Ovary Syndrome (Stein-Leventhal Syndrome)
mimic those of Pseudo Cushing's.
Forum led by:
Board_Moderator,
Victoria
Other pituitary tumors such as: Acromegaly, Craniopharangia, Empty
Sella, Non Functioning Adenomas, Prolactinoma, Rathke's Cleft Syndrome,
Stalk Tumor
Other endocrine diseases such as Acanthis Nigricans, Arnold-Chiari
Malformation, Diabetes, Insulin Resistance, Hashimoto's Encephalopathy,
Hypogonadism, MEN [Multiple Endocrine Neoplasia], Pheochromocytoma [Adrenal
Tumor], Polyglandular Deficiency Syndrome, Primary hyperaldosteronism,
Sheehan's Syndrome and Thyroid issues are discussed here.
Forum led by:
Board_Moderator,
Rose Marie
Other Diseases
Arthritis, Ankylosing Spondylitis, Autoimmune, Cancer, CFS (Chronic Fatigue
Syndrome), Fibromyalgia, Flu, Lupus, Lyme Disease, Lymphoedema, Pneumonia,
Sarcoidosis, Scleroderma and Shingles are discussed here.
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Board_Moderator
Urine
17-Hydroxycorticosteroids (17-OHCS), 17-Ketogenic Steroids (17-KGS), 24 Hour
Urine, Free Cortisol (UFC), High Cortisol, Creatinine, Potassium
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Board_Moderator
Miscellaneous Tests
Everything else, including Circadian Rhythm, Insulin resistance, Short and
Long senacthen tests, Testosterone
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Board_Moderator
Post-op Adrenal
Thanks to a suggestion from Deb, we're going to collect all the adrenal
post-op suggestions in one place. For now, there will be only one new topic
here, to keep all the experiences together.
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Board_Moderator
Post-op Pituitary
Thanks to a suggestion from Deb, we're going to collect all the pituitary
post-op suggestions in one place. For now, there will be only one new topic
here, to keep all the experiences together.
Forum led by:
Board_Moderator,
Leslie
Lighten Up!
We all need a break every now and then from talking about testing, symptoms
and surgery. We can use this area to post humor, funny stories, recipes,
just chatter...anything that will take our minds of medical troubles and
lighten our days
Forum led by:
Board_Moderator,
Kammie
