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Author: MaryO

Cushing's and kidney cancer (renal cell carcinoma) patient, founder, owner and webmaster of Cushing's Help and Support, web designer, piano teacher and mom. I am a Cushing's patient who has dealt with Cushing's symptoms since 1983 (or earlier) and the aftereffects of pituitary surgery since 1987. Because I had very little support for my symptoms, diagnosis and surgery, I decided to try to make things a little better for other patients and started a support site called Cushing's Help and Support in 2000. The site has grown to astronomical numbers. This disease isn't as rare as doctors have told us! In 2006, I was also diagnosed with kidney cancer (renal cell carcinoma). My left kidney and adrenal gland were removed. Having an adrenal gland removed complicates my post-Cushing's symptoms. I am not planning to have any more rare and unusual diseases. My entire bio to date can be found here: http://www.cushings-help.com/maryos_story.htm But, enough of that - it's not always about Cushing's, or even Cancer. This one is about Life!
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Rare Disease Day
2 min 0
  • Cushings
  • Pituitary
  • Symptoms

Rare Disease Day

  • MaryO
  • February 28, 2026
What am I doing for Rare Disease Day? For me, it’s more that one day…
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Cushing’s Disease Basics
2 min 0
  • Basics
  • Cushings
  • Symptoms

Cushing’s Disease Basics

  • MaryO
  • February 27, 2026
Cushing’s Disease is a rare condition caused by excessive production of cortisol, a hormone essential…
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Pituitary Adenoma Education Day
1 min 0
  • Meetings
  • Pituitary
  • Save the Date
  • Webinar

Pituitary Adenoma Education Day

  • MaryO
  • February 20, 2026
We’re thrilled to invite you to the Mayo Clinic Pituitary Adenoma Education Day Directors: Mayo Clinic…
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Cushing’s Myths and Facts: “All types of Cushing’s are the same”
2 min 0
  • Adrenal
  • Basics
  • Cushings
  • Pituitary

Cushing’s Myths and Facts: “All types of Cushing’s are the same”

  • MaryO
  • February 18, 2026
Myth: “All types of Cushing’s are the same”   Fact: In the words of our…
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Save the Date: Menopause: new approach to management on Sunday February 22 2026 at 6 PM
1 min 0
  • Meetings
  • Save the Date
  • Webinar

Save the Date: Menopause: new approach to management on Sunday February 22 2026 at 6 PM

  • MaryO
  • February 18, 2026
Menopause: new approach to management Theodore Friedman, MD, PhD will be giving a GoodHormoneHealth webinar…
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Myths and Facts about Cushing’s: UFC’s are the Gold Standard for Cushing’s testing
2 min 0
  • Cushings

Myths and Facts about Cushing’s: UFC’s are the Gold Standard for Cushing’s testing

  • MaryO
  • January 18, 2026
Myth: “UFC’s are the Gold Standard for Cushing’s testing” Fact: UFC stands for Urinary Free…
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Understanding Cortisol: The Stress Hormone Explained
4 min 0
  • Basics
  • Cushings

Understanding Cortisol: The Stress Hormone Explained

  • MaryO
  • January 18, 2026
The Double-Edged Sword of Cortisol Cortisol often receives negative attention, typically branded as the “stress…
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Adrenal Insufficiency United Free Workshop on Five Principles of Self-Advocacy
1 min 0
  • Adrenal
  • Adrenal Crisis
  • Meetings
  • Save the Date
  • Self Care
  • Webinar

Adrenal Insufficiency United Free Workshop on Five Principles of Self-Advocacy

  • MaryO
  • January 8, 2026
Adrenal Insufficiency United are offering a free workshop this Thursday to introduce you to the…
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Hypopituitarism: An Essential Guide
1 min 0
  • Books
  • Doctors

Hypopituitarism: An Essential Guide

  • MaryO
  • January 2, 2026
Hypopituitarism, a partial or complete deficiency of one or more anterior pituitary hormones, is a…
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Myths and Facts about Cushing’s: “Vitamins and Natural Remedies can cure/heal Cushing’s”
3 min 0
  • Adrenal
  • Cushings

Myths and Facts about Cushing’s: “Vitamins and Natural Remedies can cure/heal Cushing’s”

  • MaryO
  • December 18, 2025
Myth: “Vitamins and Natural Remedies can cure/heal Cushing’s” Fact: Do you know how many people…
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Posts pagination

1 2 … 16 Next

  • 📅 What I'm Doing for Rare Disease Day
  • ℹ️ Cushing's Disease Basics
  • ✍️ Rare Disease Day 2026: MaryO, Pituitary/Adrenal Insufficiency/Kidney Cancer Bio
  • 📅 Today is Rare Disease Day
  • 📰 Disease Remission and Surgical Outcomes of Endoscopic Transsphenoidal Surgery for Cushing Disease: A Single Center Experience
  • 📅 What I'm Doing for Rare Disease Day
  • 🏞 Cushing's MemberMap
  • ❓Hadie (Lane), Undiagnosed Bio
  • ❓ Annette S (Annette), Undiagnosed Bio
  • ✍️ Add or update Your Bio

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  1. MaryO on Webinar: Empowering Patients: Co-Designing Clinical Trials for Better OutcomesAugust 25, 2025

    Yes, I think it will be. I'll post the link here after it's released. I'm going to be at work,…

  2. Amy Barnett on Webinar: Empowering Patients: Co-Designing Clinical Trials for Better OutcomesAugust 23, 2025

    Will it be recorded? I can’t attend as I will be at work.

  3. Fallon Hart on When It Looks Like Cushing’s But It Isn’tAugust 6, 2025

    If they have all these would that not qualify as Cushings? I have the pituitary tumor, I have all the…

  4. MaryO on We’re almost 25!July 20, 2025

    From Facebook: Diane J ~ "Happy Anniversary! You have helped to support so many to navigate and figure out this…

  5. MaryO on Day 14, Cushing’s Awareness ChallengeMay 28, 2025

    Fallon, I know what you're going through. Are you in the United States? Generally, endocrinologists are the only ones who…

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