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Research Study for Patients Diagnosed with Cushing’s Disease and Their Caregivers
1 min 0
  • Cushings
  • Pituitary
  • Studies

Research Study for Patients Diagnosed with Cushing’s Disease and Their Caregivers

  • MaryO
  • September 16, 2025
We’re looking for caregivers to loved ones diagnosed with Cushing’s Disease or patients diagnosed with Cushing’s Disease to participate in a…
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Webinar: Empowering Patients: Co-Designing Clinical Trials for Better Outcomes
3 min 2
  • Studies
  • Webinar

Webinar: Empowering Patients: Co-Designing Clinical Trials for Better Outcomes

  • MaryO
  • August 23, 2025
Date & Time Aug 26, 2025 10:00 AM in Eastern Time (US and Canada) Description Are you…
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Cushing’s Syndrome Study for Patients and Caregivers
2 min 0
  • Studies
  • What Do You Think?

Cushing’s Syndrome Study for Patients and Caregivers

  • MaryO
  • July 7, 2025
We have an opportunity for you to take part in a Cushing’s Syndrome Study for patients and…
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Take Part in a Cushing’s Clinical Trial!
2 min 0
  • Cushings
  • Studies

Take Part in a Cushing’s Clinical Trial!

  • MaryO
  • March 28, 2025
  Cushing’s Syndrome (Hypercortisolism) patients United States 30-minute online survey, compensation is $60 If you are already…
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Rare Patient Voice Current Studies, July 2024
3 min 1
  • Studies

Rare Patient Voice Current Studies, July 2024

  • MaryO
  • July 25, 2024
Here’s your chance to make your voice heard on your health Issues. We have hundreds…
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  • 📰 A Positive Corticotropin-Releasing Hormone Test May Obviate the Need For Petrosal Sinus Sampling in Patients With Cushing’s Disease
  • ✍🏼 Cushing’s Bios
  • 📰 Age and Hematologic Parameters Can Predict Prolonged Glucocorticoid Replacement After Remission Of Cushing Disease And Adrenal Cushing’s Syndrome
  • 📅 Cushie Calendar
  • 📰 Detailed MRI Analysis Provides Correlations with Clinical Features and Response to Treatment in Cushing’s Disease
  • 🧠 Hannah C, Video Bio
  • ✍️ Mary (TheGoat), Pituitary Bio
  • 🏞 Cushing's MemberMap
  • ✍️ Vynn, Pituitary Bio
  • ✍️ Comment added to Jessica (JessicaAnn), Undiagnosed Bio

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  1. MaryO on Webinar: Empowering Patients: Co-Designing Clinical Trials for Better OutcomesAugust 25, 2025

    Yes, I think it will be. I'll post the link here after it's released. I'm going to be at work,…

  2. Amy Barnett on Webinar: Empowering Patients: Co-Designing Clinical Trials for Better OutcomesAugust 23, 2025

    Will it be recorded? I can’t attend as I will be at work.

  3. Fallon Hart on When It Looks Like Cushing’s But It Isn’tAugust 6, 2025

    If they have all these would that not qualify as Cushings? I have the pituitary tumor, I have all the…

  4. MaryO on We’re almost 25!July 20, 2025

    From Facebook: Diane J ~ "Happy Anniversary! You have helped to support so many to navigate and figure out this…

  5. MaryO on Day 14, Cushing’s Awareness ChallengeMay 28, 2025

    Fallon, I know what you're going through. Are you in the United States? Generally, endocrinologists are the only ones who…

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