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Author: MaryO

Cushing's and kidney cancer (renal cell carcinoma) patient, founder, owner and webmaster of Cushing's Help and Support, web designer, piano teacher and mom. I am a Cushing's patient who has dealt with Cushing's symptoms since 1983 (or earlier) and the aftereffects of pituitary surgery since 1987. Because I had very little support for my symptoms, diagnosis and surgery, I decided to try to make things a little better for other patients and started a support site called Cushing's Help and Support in 2000. The site has grown to astronomical numbers. This disease isn't as rare as doctors have told us! In 2006, I was also diagnosed with kidney cancer (renal cell carcinoma). My left kidney and adrenal gland were removed. Having an adrenal gland removed complicates my post-Cushing's symptoms. I am not planning to have any more rare and unusual diseases. My entire bio to date can be found here: http://www.cushings-help.com/maryos_story.htm But, enough of that - it's not always about Cushing's, or even Cancer. This one is about Life!
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Basics: Cushing’s Syndrome Overview
1 min 0
  • Basics
  • Cushings

Basics: Cushing’s Syndrome Overview

  • MaryO
  • June 13, 2025
Cushing’s syndrome is a rare disorder that occurs when the body is exposed to too…
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Adrenal Insufficiency Self Care
9 min 0
  • Adrenal Crisis
  • Cushings
  • Post-Op
  • Self Care

Adrenal Insufficiency Self Care

  • MaryO
  • June 10, 2025
Info from MaryO.  Luckily, AIU posted something on Facebook that gave me the perfect information…
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What’s on *Your* Medical ID?
1 min 0
  • Basics
  • Self Care
  • What Do You Think?

What’s on *Your* Medical ID?

  • MaryO
  • June 5, 2025
You do have one, right??? I loved the one that Natalie had and, after her…
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Would *YOU* Do This?
3 min 0
  • What Do You Think?

Would *YOU* Do This?

  • MaryO
  • June 3, 2025
I remember someone on the House TV series trying a stunt like this on the…
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Endoscopic Transsphenoidal Approach for Pituitary Tumor Resection
1 min 0
  • Pituitary

Endoscopic Transsphenoidal Approach for Pituitary Tumor Resection

  • MaryO
  • June 2, 2025
Please be advised that this video contains graphic footage of surgery. This video depicts an…
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Webinar: Adrenal Insufficiency: Physician and Patient Perspectives
1 min 0
  • Adrenal Crisis
  • Webinar

Webinar: Adrenal Insufficiency: Physician and Patient Perspectives

  • MaryO
  • May 31, 2025
Adrenal insufficiency is still a preventable cause of death, and a diagnosis carries with it…
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Register for Johns Hopkins Pituitary Patient Education Day
1 min 0
  • Doctors
  • Meetings
  • Pituitary

Register for Johns Hopkins Pituitary Patient Education Day

  • MaryO
  • May 30, 2025
October 25 @ 9:00 am – 1:00 pm The annual Pituitary Patient Education Day is a free event that…
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Foundation Seeks Awareness on Cushing’s Syndrome
2 min 0
  • Cushing's Awareness Challenge
  • Cushings

Foundation Seeks Awareness on Cushing’s Syndrome

  • MaryO
  • April 10, 2025
The Aisha Adamu Fari Foundation has emphasised the need for increased investment in raising awareness…
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Take Part in a Cushing’s Clinical Trial!
2 min 0
  • Cushings
  • Studies

Take Part in a Cushing’s Clinical Trial!

  • MaryO
  • March 28, 2025
  Cushing’s Syndrome (Hypercortisolism) patients United States 30-minute online survey, compensation is $60 If you are already…
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Cushing’s Myths and Facts: Cushing’s is RARE, No one has Cushing’s!
1 min 0
  • Cushings
  • Media

Cushing’s Myths and Facts: Cushing’s is RARE, No one has Cushing’s!

  • MaryO
  • March 18, 2025
Myth: “Cushing’s is RARE”, “No one has Cushing’s!”, “It is literally impossible for you to…
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  1. MaryO on Webinar: Empowering Patients: Co-Designing Clinical Trials for Better OutcomesAugust 25, 2025

    Yes, I think it will be. I'll post the link here after it's released. I'm going to be at work,…

  2. Amy Barnett on Webinar: Empowering Patients: Co-Designing Clinical Trials for Better OutcomesAugust 23, 2025

    Will it be recorded? I can’t attend as I will be at work.

  3. Fallon Hart on When It Looks Like Cushing’s But It Isn’tAugust 6, 2025

    If they have all these would that not qualify as Cushings? I have the pituitary tumor, I have all the…

  4. MaryO on We’re almost 25!July 20, 2025

    From Facebook: Diane J ~ "Happy Anniversary! You have helped to support so many to navigate and figure out this…

  5. MaryO on Day 14, Cushing’s Awareness ChallengeMay 28, 2025

    Fallon, I know what you're going through. Are you in the United States? Generally, endocrinologists are the only ones who…

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